Nick and Chloe Jansen
Own business in packaging and stay at home mom.
Age of parents:
40 and 36
Age: 3 Years
Is this your only child?
No, I'm pregnant with our second child.
Diagnosis of child:
Cerebral Palsy. Spastic Quadriplegic.
What are the biggest challenges facing your child on a daily basis?
I am TRUSTING GOD with our boy, in so many ways. To keep him healthy and protected from this virus.In all the therapies we are missing, I often wonder if he will fall behind even further- feeding, development, communication- yet another opportunity to TRUST GOD. The fact that he needs new AFO’s and a new chair for here at home, and and and. TRUST GOD. Timing, needs, wishes. It’s a continual battle in my mind and heart- stop worrying, and I’m trusting GOD with this.
What are the happiest moments you have with your child on a daily basis
Anything to do with water makes Julian shine - a bath, swimming in a pool, kicking his feet in a bucket of water.
Are you married?
Has your special needs child had an effect on your marriage?
Yes of course - but not only in negative ways. My husband has a wicked sense of humour, that keeps us finding the funny during these challenging times. He makes a mean curry and is kind and generous. And he does the early morning shift with Julian most mornings - which makes him a hero around these parts.
Are your family and friends supportive?
We are a tight knit family, Julian has the coolest gang of cousins who all hang out together. I love my family.
Do you take time out, if so what do you do to relax?
I think sometimes we need to take the pressure OFF ourselves as moms- and just chilllllll out. It’s ok if they are watching a lot of tv. It’s ok if they are snacking all day. It’s ok if there are moments of frustration. It’s ok that you’re not a top-notch homeschooler. This time we get with them is so precious, and we’ll never get it back, so why not do what we need to do to stay sane, and then ENJOY these tiny humans while we can.
What has your child taught you about yourself, both positively and negatively?
Life is so heart-breakingly beautiful. LIFE- no matter what kind of package it comes in- is a GIFT.
What has made the biggest difference to your child’s quality of life?
We do the best we can for Julian, GOD is looking out for us and I trust in HIM.
What is your dream for your child?
I wish I knew what Julian dreams of. I hope he has wonderful dreams of being free, maybe swimming.Right now all I want is for us to get through Covid and then we can start planning a future for Julian.